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Long COVID Service

What is Long COVID?

Following the initial COVID-19 infection some people continue to have symptoms for longer than others. When the symptoms last for longer than 12 weeks this could be called Long COVID or Post-COVID Syndrome. The exact number of people who are experiencing Long COVID is unknown, we think this may effect up to 1 in 10 people.

Definitions of COVID

Acute COVID

Symptoms of COVID-19 infection at 0-4 weeks from initial infection

Prolonged-COVID / On-going symptomatic COVID-19

Symptoms lasting greater than 4 weeks, but up to 12 weeks from initial infection

Approximately 20-25%, i.e. 1 in 4 people, who get COVID, will still have ongoing symptoms up to 12 weeks after their initial infection.

Post-COVID Syndrome

Persistent symptoms greater than 12 weeks from initial infection

'Long COVID'

There is no agreed medical definition about what 'Long COVID' is

'Long COVID' as a name, started on social media and has been adopted for use widely

Sometimes it refers to symptoms after 4 weeks, sometimes it refers to symptoms after 12 weeks

For clarity, on this website, we will use 'Long COVID to refer to symptoms over 12 weeks after initial COVID-19 infection

Some common symptoms of Long COVID include:

You might be experiencing some or all of these symptoms - everybody's experience is different

· Fatigue

· Breathlessness

· Fast heart beat (or palpitations)

· Altered cognition or brain fog

· Altered taste and/or smell

· Anxiety

· Low mood

· Change in sleep pattern

About the Long COVID Service

Most people who develop COVID-19 improve with time and support from their GP. However when symptoms don't improve after about 12 weeks you may need more specialist help. If you are concerned or would like anymore support, please discuss this with your GP. The Long COVID Service aims to work with you to understand your individual experience and develop a plan to help you.

Whilst you are under the care of the Long COVID service you may see some or all of our team members, depending on your individual needs.

The Long COVID service is a multidisciplinary team including:

· Specialist doctors/consultants

· Occupational therapists

· Physiotherapists

· Psychological therapists

· Wellbeing for life

 

Meet the team:

Management Team

· Dr Jen Steel - Medical Director Community Services, Long COVID Sponsor/Lead

· Louse Nelson - Associate Director of Therapies, Long COVID Lead

· Helen Stoker - Long COVID Programme Manager

Consultants

· Neil Munro - Respiratory Consultant

· Dr Philippa Bolton - Consultant Psychiatrist

· Richard Geary - Consultant Anaesthetist

GPs

· Dr Caroline Gibson - Lead GP

· Dr Catherine Green

· Dr James Larcombe

· Dr Sarita Martin-Campbell

· Dr Jenny Smith

Therapies

· Sarah Rice - Occupational Therapist

· Margaret Omole - Occupational Therapist

· Hannah Wylie - Physiotherapist

· Kirsten Miller - Physiotherapist

Mental Health

· Maria Bromage - Cognitive Behavioural Therapist

Wellbeing for Life

· Julie Form - Wellbeing for Life Manager

Diane Taylor - Health Trainer

 

General Long COVID Resources

· Your COVID Recovery Website https://www.yourcovidrecovery.nhs.uk/ - NHS website to support recovery of Long COVID

· Homerton University Hospital. ACERS: Post COVID-19 patient information pack. Post-COVID-19-information-pack-5.pdf (hackneycitizen.co.uk) - General information around various aspects of Long COVID

· COVID-19 recovery Collective Https://covid19-recovery.org - a UK based site including patient stories and a resource librar y

· Support for older people  Older People - Knowledge and Library Services - a list of links and resources to support older people following COVID 19

Support for Anosmia (or loss or change in smell)

· Support for loss or change in smell and/or taste. https://www.fifthsense.org.uk/about-fifth-sense/-

· Smell retraining post-COVID. https://abscent.org/nosewell

Managing Fatigue

  • Chartered Society of Physiotherapy. COVID-19: The road to recovery activity planner. https://www.csp.org.uk/system/files/documents/2020-06/001751_covid19-the_road_to_recovery_activity_planner_v3.pdf- Activity planner for return to work

Sleep:

· Information to help understand insomnia and sleep disturbance - https://www.nhs.conditions/insomnia

· Information resource to understand sleep disturbance and tiredness - https://www.nhs.uk/live-well/sleep-and-tiredness

· Understanding sleep disturbance and management strategies - https://www.nhs.uk/oneyou/every-mind-matters/sleep

Return to work guidance:

· Support for workers returning to the workplace post-COVID https://www.som.org.uk/covid-19-return-work-guide-recovering-workers

· Advice for managers supporting staff returning to work post-COVID https://www.som.org.uk/covid-19-return-work-guide-managers

· Short videos created by OT/Physio team in Derby. Can be really helpful when considering return to work

o Managing COVID related symptoms during sickness absence: https://youtu.be/3fHeLbDo40U

o Return to work rehabilitation: https://youtu.be/29KcxHJb4qU

o Managing ongoing COVID related symptoms in the workplace: https://youtu.be/JNUBmWJgFms

o Supporting staff with ongoing COVID related symptoms to return to work: advice for managers: https://youtu.be/bryRdjlzqRM

· Royal College of Occupational Therapy - Managing well at work guide. https://www.rcot.co.uk/file/4118/download?token=_TU_3nYa

Breathing and Breathlessness

Nutrition:

· British Dietetic association -nutritional advice regarding coronavirus https://www.bda.uk.com/resource/covid-19-corona-virus-advice-for-the-general-public.html

· NHS Change for Life - general dietary advice https://www.nhs.uk/change4life

· Information related to diet and food choices. https://food-guide.canada.ca/en/

· Information regarding benefits of plant based diet https://plantbasedhealthprofessionals.com/factsheets

Social and financial support:

· Citizens Advice Bureau. Helping people through the COVID-19 pandemic. https://www.citizensadvice.org.uk/work/coronavirus-if-youre-worried-about-working/

· Advisory Conciliation and Arbitration Service (ACAS). Coronavirus (COVID-19): advice for employers and employees. https://www.acas.org.uk/coronavirus

· Carers UK. Coronavirus guidance. https://www.carersuk.org/help-and-advice/coronavirus-covid-19/coronavirus-covid-19

· Social Care Institute for Excellence. Supporting people who are isolated or at risk during the COVID-19 crisis. https://www.scie.org.uk/care-providers/coronavirus-covid-19/support-for-isolated

Faith organisations:

· Church of England coronavirus and faith https://www.churchofengland.org/more/media-centre/coronavirus-covid-19-guidance-churches

· Methodist coronavirus site https://www.methodist.org.uk/about-us/coronavirus/

· Catholic coronavirus site https://www.cbcew.org.uk/home/our-work/health-social-care/coronavirus-guidelines/

· Sikh Helpline. Coronavirus update. https://www.sikhhelpline.com/coronavirus/

· Jewish Care. Online and local resource library. https://www.jewishcare.org/informationduringcovid

· Muslim Council of Britain. COVID-19 guidance for Muslim communities. https://mcb.org.uk/resources/coronavirus/

Ethnic organisations:

· Ubele. COVID-19 resource page for African diaspora communities. https://www.ubele.org/

Greater Manchester Centre for Voluntary Organisation. Support and resources for BAME Communities. https://www.gmcvo.org.uk/Coronavirus/BAMESupport

What is Long COVID?

Following the initial COVID-19 infection some people continue to have symptoms for longer than others. When the symptoms last for longer than 12 weeks this could be called Long COVID or Post-COVID Syndrome. The exact number of people who are experiencing Long COVID is unknown, we think this may effect up to 1 in 10 people.

Definitions of COVID

Acute COVID

Symptoms of COVID-19 infection at 0-4 weeks from initial infection

Prolonged-COVID / On-going symptomatic COVID-19

Symptoms lasting greater than 4 weeks, but up to 12 weeks from initial infection

Approximately 20-25%, i.e. 1 in 4 people, who get COVID, will still have ongoing symptoms up to 12 weeks after their initial infection.

Post-COVID Syndrome

Persistent symptoms greater than 12 weeks from initial infection

'Long COVID'

There is no agreed medical definition about what 'Long COVID' is

'Long COVID' as a name, started on social media and has been adopted for use widely

Sometimes it refers to symptoms after 4 weeks, sometimes it refers to symptoms after 12 weeks

For clarity, on this website, we will use 'Long COVID to refer to symptoms over 12 weeks after initial COVID-19 infection

Some common symptoms of Long COVID include:

You might be experiencing some or all of these symptoms - everybody's experience is different

· Fatigue

· Breathlessness

· Fast heart beat (or palpitations)

· Altered cognition or brain fog

· Altered taste and/or smell

· Anxiety

· Low mood

· Change in sleep pattern

About the Long COVID Service

Most people who develop COVID-19 improve with time and support from their GP. However when symptoms don't improve after about 12 weeks you may need more specialist help. If you are concerned or would like anymore support, please discuss this with your GP. The Long COVID Service aims to work with you to understand your individual experience and develop a plan to help you.

Whilst you are under the care of the Long COVID service you may see some or all of our team members, depending on your individual needs.

The Long COVID service is a multidisciplinary team including:

· Specialist doctors/consultants

· Occupational therapists

· Physiotherapists

· Psychological therapists

· Wellbeing for life

'I have to compliment everyone on their pleasant persona and their expertise and knowledge. By the end of the 5 days, I did not feel as though I had been in a hospital ward and was very relaxed.'

Patient, Ward 16 Orthopaedics, University Hospital of North Durham